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Pamela Mills
Posted: Friday, November 2, 2018

What to Know: Caregiving for Those with Dementia-Related Cognitive Impairment

Pamela Mills, Ingleside’s Director of Memory Programming addresses some common questions in a four-part series.

Part 1
What challenges do people face when caring for a friend or family member with dementia-related cognitive impairment?

Assisting a person with a dementia-related cognitive disease can be an all-encompassing life experience that can be gratifying, but also extremely stressful. There is no easy method to being a caregiver, as this disease is filled with loss, change, emotional strain, physical tasks and often overwhelming choices. Caregivers of people with dementia often feel alone, overwhelmed and cut off from the world. For the person experiencing cognitive decline, he or she has their own grief, fears and frustrations, which is why it is equally important that both the caregiver and person with the diagnosis actively engage in support groups and other resource services.

The stress usually increases when trying to balance caregiving along with the multiple pressing responsibilities of daily life, such as a job or raising children. They struggle in the attempt to accomplish day to day tasks while navigating the difficult decisions ahead. When the care recipient requires around- the-clock assistance, caregivers are frequently challenged by their own need to sleep, eat and maintain their own health. They may not ask for help, but could be secretly wishing for a few moments for themselves to be without worry. There is also the emotional pain of seeing the person in the process of decline.

Another challenge is attempting to maintain a social life outside of the home. Persons with cognitive decline frequently become increasingly unable to tolerate and participate within social situations. He or she may no longer wish to go to a favorite restaurant because the menu is overwhelming or the environment too noisy. He or she may also struggle to participate in conversations and may seek to avoid them. Both partners are also increasingly concerned with the stigma of the disease. Often people are unaware of to how maintain a normal friendship with a person who has cognitive decline, whereupon they may distance themselves from the formerly strong relationship.

Overall, the main challenge for all persons experiencing the world of dementia, is maintaining a sense of normalcy and continue to thrive within both our relationship and the world at large.

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